What is
A rare disease that occurs when abnormal proteins called amyloids build up in organs and tissues throughout the body. Early diagnosis and treatment are crucial for managing the condition and improving outcomes.
Our
The Joseph Peter Bartzis Foundation was formed to bring awareness to Amyloidosis, to help fund research to find a cure, and encourage young adults to receive annual physicals and blood tests.
We want to bring awareness to Amyloidosis, a rare blood disorder that occurs when plasma cells in your bone marrow change or mutate, and raise funds to support advancing research in the field. It is estimated that 4,500 people develop Amyloidosis annually, but so often this disease goes undiagnosed or the diagnosis is delayed.
We encourage young adults to advocate for their health and go for annual physicals and blood work. The reason is more than an early diagnosis of Amyloidosis, but the plethora of other health conditions that are out there.
“Today, there are an increasing number of health conditions affecting the general public. Don’t wait until it is too late. Be an advocate for your own health. I don’t want another young adult to go undiagnosed with a disease that can be treated with an early diagnosis.”
- Peter Bartzis
4000 to 5000
New amyloidosis cases are dignosed annually in the U.S., primarliy in individuals over 50 years old.
3-4%
African Americans carry the V1221 mutation in the transthyretin (TTR) gene, increating the their risk of hereditary ATTR amyloidsis
12 Months
Untreated AL amyloidosis has a median survival of 12 months, underscoring the importance of early diagnosis
Commonly Affected
The heart, kidneys, liver, and nervous system are the most commonly affected organs
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